Just a quickie post - off to the Brompton tomorrow afternoon (Friday) for what is technically my 'annual review clinic visit' thing, even though I saw the docs when I had my annual review about 6 weeks ago.
I'm hoping they might start me on some osteoperosis drugs - my bone density scan came back pretty shocking - my poor brittle bones! Given they hadn't booked me for a scan in about 4 years i'm quite annoyed - they could have given me something to prevent this!
I also really want to ask about this Tobi inhaler - I nebulise Tobi twice a day alternating with colomycin every month, and even though the half an hour nebuliser lulls me to sleep every time (pretty blissful), it would be fan-bloody-tastic just to have an inhaler! I think there might be a colomycin one too...!
Pretty sure my weight has plummeted during this rocky two weeks, and I even have some sort of feverish thing which has demolished my appetite. It's been horrid - since monday i've been freezing cold, boiling hot, headachey, sleepy, and no appetite. I'm on extra cipro and I very rarely tend to become feverish with an infection so i'm hoping it ISN'T an infection... maybe I caught old granny germs from Chelsea and West. I have all my fingers and toesies crossed that they won't keep me in for IV's because that would suck balls.
But i'll put up a cool, calm and collected fight - Laura style - I'll talk steel if they want me in while maintaining this charming and polite exterior. Bat some eyelashes too. Maybe? At least i'll make them wait until my 3 weeks of cipro is up - buy me some time while I frantically beat all the gunk outta me and spend every meal time at McDonalds! That should do it.
:-/
Good luck today, I hope you don't need IVs! And yes, get yourself down to Maccy D's girl...that's what I've been doing because I've lost a bit of weight recently and I want to put it back on before my next appointment. CF Clinic can be so bizarre, where else would you get told off for not eating enough chocolate?
ReplyDeleteI really hope you feel better soon! xxx