CF & Drugs

Diagnosed at 10 months
First IVs/ hospital stay at 10 years
CF related diabetes at 14 years old
CF liver disease at 17
Multi-visceral transplant (Liver/ pancreas/ duodenum) at 23


For more info on CF, just google it.


Here's my list of meds for you curious people out there!

FIRSTLY, pre-transplant:

Acapella 2x day, 20 mins/ however long my TV programme is

Salbutamol + Ipatropium nebs combined (2x a day)
DNAase neb (1x a day, sometimes twice)
Tobi/ Cayston neb (alternate months) (2x a day/ 3x a day)

Novo rapid insulin (approx 26 units with meals)
Glargine insulin (26 units at bedtime)

Creon 10,000 (about 50 a day)
Doxycycline (100mg 1 a day)
Azithromycin (250mg 3x a week)
Omeprazole (1 a day)
Tranexamic Acid (2 a day)
Colecalciferol (3x a week)
Vit A+D (alternating 2/ 4 tabs a day)
Vit E (2 tabs a day)
Vit K (1 a day)
Ursodeoxycholic acid (300mg a day)
Iron (200mg 1 a day)
Domperidone (sometimes)
Senna (sometimes)
Gastrograffin (when needed)
Cipro for bad coughs/ start of a cold

Bricanyl (2 puffs 2x a day)
Symbicort (2 puffs 2x a day)

2 Fortisips a day (600 cals)

Plus butter added to everything
High calorie food always
Sugary calories/ fizzy drink only with food
Lots and lots of protein for my liver
Basically a diet the whole world would crave

I hate all high calorie medical supplaments (ie fortijuice, scandishakes etc)
... so mostly just eat Haagen Daaz instead (Aw shucks man), unless things ain't good.

Have to aim for 3000 cals a day, more now i'm on the transplant list. (eek!)


UPDATE POST TX

Acapella 2x day, 20 mins/ however long my TV programme is

Salbutamol + Ipatropium nebs combined (2x a day)
DNAase neb (2x a day)
Tobi/ Cayston neb (alternate months) (2x a day/ 3x a day)

(insulin - my islet cells in the panc rejected, so i'm type 1 diabetic)
Novo rapid insulin (approx 2 units with meals)
Levemir insulin (6 units morning and night)

(immuno-supressants)
Adoport 1mg (2x a day)
Mycophenalate 250mg (2x a day)

Doxycycline (100mg 2x a day)
Azithromycin (250mg 3x a week)
Posaconazole (300mg 1 a day)
Cipro for bad coughs/ start of a cold
Bricanyl (2 puffs 2x a day)
Symbicort (2 puffs 2x a day)
Mannitol (10 capsules 2x a day)
Norithisterone
Movicol

Normal Diet