I had an echo the other day, to check my heart. I think my gastro/ endoscopy doc wanted it checked because he said if I start bleeding again, it'll be from some other place inside (he seemed to know where, mr Psychic Doc). They'll then have to do a different procedure (ie not banding the varicies), and for that will need to know how my heart and veins etc are looking. He didn't go into much detail, but it seemed a little more serious than a simple endoscopy and tying a rubber band around bleeding blood-vessels in the food pipe. Eek! I hope I won't need to find out more about this enigma, and will get my new liver before things turn even more dire...! But my heart is fine, which is good to know! That day however, my mood was not, as the silly appointment was at 9 o'clock. That day felt so long! I would think it was tea time, but it was midday. I wanted dinner, but it was like 3. It was like some annoying eternal day. I suppose this is the real world, as opposed to my sleepy nocturnal world where the majority of it is in darkness. Made a change, and actually, despite that mini-rant, quite a nice one...!
It's been CARNIVAL weekend. Yes, Notting Hill Carnival is fantastic. I, however, spent it in my garden with my book, my cat, haribo, and ginger beer, listening to the neighbours and the distant boom of sound systems and hooting horns and police helicopters. I've had some fantastic carnivals (free rum punch!), but this year I gave it a miss. Too sleepy and didn't want to get elbowed in the spleen. Yoww. Tomorrow I may venture out to the food stalls, pick up some plantain and a coconut to drink, but i'll see. (Look at how cute my Sky cat is!)
Also made a discovery! The last few months i've thought my nails looked even more clubbed (ie rounded and bulgy). Clubbing is tres common in CF, but they were never this big and nobbly! So, my new discovery is that nails can also become clubbed with liver cirrhosis - CF or no CF! I'm now hoping post transplant they'll return back to their normal only slightly clubbed selves. I know I know they're only nails, but they're getting tricky to paint haha. And kinda uglyyyy. Also noticed it's technically called 'digital clubbing', which sounds all high-tech and made me think i'm totes cool. Down with the kids YA KNOW. Fancy a forest rave? Do the robot? Maybe i'll paint them in neon colours and start a CF 'in' joke.